Day +32 New Years Eve

Today was the third consecutive day Brett's been allowed home for a few hours.
It's had it's highs and lows.
Mostly to do with hospital staff not being on the same page.
It's all very well one doctor saying you'll be home by next week but not if the next doctor says you should be home in the next 2/3 weeks.
Communication is my biggest gripe within the NHS.

I am not moaning about our amazing FREE world leading health service. Not one bit. The cost of Brett's fantastic innovative treatment is probably in the millions in all honesty.
He's had new chemotherapies worth thousands each. Then you add up the nursing, hospital stays, medication, chemotherapy, radiotherapy, home nurses, phlebotomy cost, micro biologists and many more aspects that I'm not even aware of.

I do know that a straight forward transplant alone costs the NHS £250,000.
So, no I am not moaning.

Ok, but I will suggest that the biggest bug bear that exists, is the lack of communication/ different opinions.
If every health care professional was on the same page it would make the patients and families experience much better.
Simple things such as: Brett's being fed by an artificial nutritional agent called TPN. Which goes straight into his major artery via his central line and takes 24 hours to complete the daily infusion.
Apparently it can't just be stopped it has to be weaned down.
Although another teenager with cancer whose a friend was visiting Brett today said she had hers stopped immediately one day!!
Anyway -
consultant said - I'll reduce it by 4 hours
Next day another doctor said I can't reduce it yet as your body is relying on it.
Same day a nurse says we can only reduce it by 2 hours a day.
What are you supposed to think?
I listen to the highest paid member of staff.
Consultant wins.
Would the rest of you please keep your nose out of it.
And it's the same for everything. Everyone has an opinion or experience and it all goes into the pot to make a very confusing soup which there is no need for.

Tonight is News Years Eve.
Kev and Poppy are round my brothers for a few hours but are going home before midnight.
Brett's asleep (and grumpy- he wants to be out of hospital for good)
and I am blogging drinking coffee and eating chocolate.
It feels like the world is partying and I'm missing out ....again.

But who cares ?
It so could be much worse
I am a very lucky and grateful mum.

Happy New Year to all my readers across the world.