Today is tantalisingly teasing.
Brett has been told he could be allowed home tonight for overnight leave , then back tomorrow for bloods and checks then allowed weekend leave to return Monday for bloods and checks and then ...... Full discharge.
Eppppppppp.
Last night could have been our last night in hospital ... Or it may not have.
We are so close to the finishing line we can almost taste it.
The sweet smell of freedom.
Ok, not freedom exactly
Brett will be coming up to the ward three times a week for bloods and checks initially. Then it goes down to twice a week and eventually once a week.
It makes me realise how much he's been through and how precarious the situation still is but Sod It - I am so happy.
Brett still has to be signed off his meds yet.
This is to prove Brett (and another) is proficient at timing and working out all his various meds.
Last night was our first 'lesson' and it went fine except for Brett getting annoyed.
Why are you showing me and explaining my medication when I've been doing this for over four years?
Valid question I thought though he's going to hate the answer
Because this is exact medication and if you go wrong you could make yourself very ill or jeopardise the whole transplant.
Cue - grumpy teenage outburst
I thought this was gonna be all over, I thought I'd be able to go and just live my life, not have to spend the rest of my life counting stupid tablets.
The nurse replied calmly 'the tablets will be reduced to less and less eventually but you are going to be checked out for the rest of your life so get used to it'
I couldn't comment.
Im just happy he's lived.
So many don't make it
In my eyes it's what's a few tablets. Shut up Boy!
I am off now to wake Brett up so we can go and do his 9am meds.
This is going to be fun!
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