First Clinic

Brett got discharged Monday evening.... Simply Divine, yet busy!

My time since then has been spent cleaning, cooking and unpacking.
Its amazing how much junk you can ecru in a tiny hospital room.

It has been very challenging to get our heads around the 'clean diet' rules and all the medication Brett has to have.
We have enjoyed our time at home immensely, we all take such basic things for granted.

Today was Brett's first clinic day - Eppp!!
Transplant clinic is held on the normal oncology ward as he (and the others) are too vulnerable to infection to attend normal oncology outpatients.
I was so happy to attend this clinic, which I realise is a weird response, but it was a major mini goal just to get there.
Its important to set mini goals when faced with a long road.
Our next mini goal is when Brett is deemed well enough to only need to attend clinic once a week.

Transplant clinic was only attended by Brett and 2 other amazing teenagers who had also recently had Bone Marrow Transplants.
They are so funny together comparing aches, pains and ailments, they sound like little old men.
When really they are super heroes.
It did shock me however, just how many staff were allocated to this clinic.
Doctors, specialist Stem cells nurses, sisters, support staff, Teenage Cancer Trust staff attended, and the Clic Sargent social worker.
For 3 patients !!!!!
So many people were in this ward it was standing room only (for us, the patients got the seats)
What it did make me realise was:
The NHS are far to short of resources to allocate 'jollies' for staff.
The staff must all have a specific job role and responsibilities within that clinic environment or they just wouldn't be there.
Just how ill is my son deemed to be ?

Anyhoo 
Everyone commented on how well Brett actually was -
He doing amazingly well.
I was asked to complete an in-depth food/drink diary for Brett, which I have done many times before.
I announced today, that it would be futile writing such a diary for Brett as it would take me all day - he eats and drinks sooo much.

His bloods came back brilliant
Neutrofils of 2.7 -
2.7 PEOPLE!!!!! - that's sooo ace.
He had a Platelet transfusion and then we were on our way back home.
Back Monday for his next clinic appointment.

I am so happy - Life is good.

I feel indestructible, but life around us isn't so good at the minute.