Today is day plus 6 and things are going well.
We got the wonderful news today that Brett's kidneys have gone back to a normal range.
Phew major relief.
He started being fed by a product called TPN yesterday
It is a food product that goes straight into the blood stream via the central line. There is some talk about the long term side effects being unknown.
The general consensus amongst the parents and staff at the hospital is we will worry about the side effects later.
It is more important these kids have a long term at all.
TPN is the answer to a lot of prayers.
Brett could have done with this form of nutrients all the way through his treatment as vomiting and weight loss have played a major part in his lack of well being whilst being treated over the last 4 years.
Brett's mucositis had gone all the way through his body the doctors think. They can see blisters and ulcers in his
mouth and all the way down his throat. Eating is too painful and pretty pointless a doctor pointed out today because if the stomach has the ulcers then it would be unable to process the nutrients anyway.
He's still sleeping a lot and constantly jumps in his sleep like you do when you've dreamt you've fell over.
Apparently it's another morphine side effect. Small price to pay for the great pain relief the drug offers.
Blood and platelet transfusion tonight means another sleepless night as the nurses conduct obs every 15 mins at the start of each individual bag of blood product.
Obs are temperature, blood pressure, heart rate and oxygen level.
Mustn't moan
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