Day + 29

Day 28
Brett continued to feel yuk.
He was still spiking temperatures and vomiting.
I had a big discussion with one of the doctors when Brett was asleep (though he was rarely awake).
The doctor thought maybe Brett had internal Graft verses Host disease, possibly in his gut.
I said I wouldn't be surprised as his gut has been a major problem throughout his 4 years treatment.
The doctor had started Brett on a course of steroids with the understanding of, if it worked it was Gvhd and if it didn't work they would have to think again.

But the truth was the doctors were a little baffled. Brett's bloods and stats were great, they could find no reason for him being so ill.

That was at 2pm, steroids given Brett back to sleep.
At 6pm Brett woke up and said he was hungry !!!!

The only thing I could find that worked with his clean diet rules was coco pops and milk.
He ate half a bowl and promptly put a food order in for today!
I was thrilled.
Amazing what little things please you.

Today Brett woke up feeling relatively good (which is still really ill to us)
I swapped with my husband at lunchtime, as we do everyday, and reported Brett felt good, he was watching TV and had chatted a bit. Then I drove home looking forward to a nice sit down.
Its been nearly 6 weeks and I'm getting really tired.

My husband phoned when I got home to tell me the excellent news that Brett may be allowed home for 3 hours tomorrow.
The hospital do a phased home release to see how your body copes with the environment.
It starts with a few hours, then one night, then a weekend, then discharge home to attend the weekly clinic appointments.

I was absolutely euphoric.
We know this isn't the end of Brett's struggle back to health, far from it. The road to full health is a long one but who cares - here we go!!

Then the horror hit me
Brett in THIS house
It's not ready, it's not clean and it looks like a bomb has gone off.

Well a bomb has - the Christmas / hospital bomb.

Crap !
So out went the nice sit down and in has come the manic cleaning.
I'm writing this whilst waiting for the tumble dryer to finish.

At this rate I should be ready just before he's released tomorrow lunchtime.