Brett did achieve remission (yeah)
and then was hastily hit with more very intense chemo.
I haven't blogged because 'intense' wasn't the word.
My poor bab and what he's been through....I couldn't write most of it.
The suffering is so intense and that's just from the side effects.
It was horrific to watch his mouth, tongue and throat just melt ....
Morphine was the state of play and it didn't touch it... omg!
I am so tired. I didn't sleep much either at hospital nor at home.(who can relax?)
He was very ill and my daughter was totally ignored. (Parents of the year, not!)
She made a comment that she only got the tired grotty parent who had left Brett's side-
Which was totally true - unfortunately - (out of the mouth of babes)We put on a huge brave face for Brett and then come home utterly spent. --- (So True... oh crap....)
So Kev and I decided to make a huge attempt to come home nice and not allow our adrenalin to drop too low as too allow us to ignore her, or worse, be grumpy with her.
She knows its hard on the healthy child .... but that doesn't make it OK in our eyes.
I have two children not one,
although its only one that could .....
Back to Brett:
A bone marrow match has not been completely found because he has a rare element to his tissue type - Oh shit....
Back To Poppy:
Poppy continues to have a horrid summer holiday being farmed off to family (I would add friends but they seem to have completely disappeared into the wood work, as have most of my family too, even my own blood line)
Back to me:
Hey fucking ho - screw em - fuck em - coz I'll never forgive em.
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Poppy has been so great with Brett this time round.
The first time Brett had cancer she was normal, ha, ha -
arguing with her annoying big brother and so on.
This time she has been soft and very understanding.
Which totally freaks me out!!!
No, she's really been lovely.
She knows her life will resume as soon as his life does.
She gets it!, which sometimes makes me even more sad.
I am angry, again...very angry.
This time I'm angry at my family and friends, not at the cancer so much.
Yeah sure cancer creates the situation but its the family and friends deserting you that makes it so lonely.
"Let me know what happens"
"I dont know what to say",
"I dont know how you do it" they bleat
- "Well I'll be doing it without your help and support, it would seem!" We think.
The only consolation is that were not alone in being left alone
Talk to any cancer family and your contact list suddenly contains drift-wood.
All the time I wasted on people who cant give nothing back to me...what a shame!
And what a waste of my time in even bothering with them in the first place.
My message to wasters:
"Be There for others, or live a sad and lonely life"
Coz in future all cancer parents will test you to see if your worth their spit and
99% of you wont be.
1 % of you will have a true friend for life.
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