Post Transplant Day 100 and Still Waiting

Brett's first T-cell test has came and went in a flame of fizzling disappointment.

His cells were 0.00, when 0.3 is the figure that will give us all our life back.

Hey Ho.

Day 100 was last Saturday.

We didn't celebrate.

I'm not trying to sound depressing but it is a very slow climb back to recovery and life, and its littered with constant, tiny setbacks.

Brett is still Platelet dependant - which just means he has to have a Platelet transfusion every week in clinic.

The transplant specialist came into clinic to see Brett last week and said that they are really hoping that his blood count starts to rise by itself in the next few weeks and they will be monitoring him closely in the meantime.

Now, Sarah - Mummy, Warrior of old would have asked a plethora of questions - What does that mean? 

What are your fears? 

What happens if the blood counts don't come up?

What's the next step?

Sarah at the minute just said 'OK' and carried on drinking her coffee.

I am so tired.

Tired of battling

Tired of cleaning the house and everything that enters it.

Tired of the stupid 'clean diet' restrictions

Tired of setbacks

Tired of - What NOW?

Tired of - "For the love of do-nuts, Give me a feckin break!"

I am, on the other hand, very happy.

I am happy spending time at home with my family just watching the boring telly.....together

eating tea....together

talking about the future....together

arguing......together

The novelty of simplistic day to day life has definitely NOT worn off.

Life is great...its just hospital visits and test results and stupid doctors that is crap.

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