Moving the goal post again

I don't know what planet hospitals are on sometimes.
They never seem to realise you could possibly want to go home at a reasonable time. Excuse me, I have another child at home. Oh of course you know that.

They go crazy on the odd occasion your accidental late for an appointment yet have no problem keeping you one or two hours past your appointment time. Most cancer patients here know if you have a half hour appointment be prepared for at least half a day waiting.

But its the constant moving of goal posts that I am sick of at the minute.

Brett's transplant was put back two weeks - not their fault. I totally get that so not a problem.

We moved onto the ward last Monday and was due to go into HDU isolation today. It has now been out back until tomorrow.

For gods sake people!!!!!

This is not like moving normal hospital beds. We have a huge list of things that need to be done correctly.
They clean all the equipment and the room
Brett has to be showered and changed just prior to moving in.
Everything that enters the room has to be either washed on the unit and placed in sealed polythene bags or carefully wiped with alcohol wipes and sealed in a polythene bag.
The bags then get wiped over and placed in his new room.

For protection purposes it's best not to take too much stuff into the unit.
Everything including ME is an infection risk.

I have blown my brain planning what can go in the unit, what can't, what needs washing, what needs wiping, what needs buying (new toothbrush paste soap shampoo etc )

I already have three bags ready to go in and the final things were gonna get done today.
But I can't now as I may still need to charge my phone or refer to his transplant information.

What a royal pain in the ass.
Stop moving the goal posts.
I was all prepared, now I'm not.

Could you imagine the chaos if Brett or I announced that, no actually we don't want to follow your plan today, come back tomorrow.