Monday, 4 February 2013

GVHD Rules

Brett has been unwell since his Bone Marrow Test last Thursday.

We did end up driving home in the manic Birmingham rush hour traffic.
And I DID end up drinking half a bottle of wine later that evening! 
Oh the stress. 
I hate driving in busy traffic with all the lane jumping crazy half wits.

Brett has been sore after his procedure - Obviously!

Bones don't like being rammed with needles and do grumble a bit.

But its more an unwell feeling then just the pain and he's sleeping ALOT.

The sleeping could be a delayed side effect from the Radiotherapy he had during his transplant conditioning. 
We were warned of this great long sleep the teenagers have. 
It normally occurs around the 6 week mark, but Brett was fine then.

His steroids have been slowly reduced, in the hope that his Graft verses Host Disease has gone. 
But it seems as though the GVHD is rearing its ugly head again. 
He has stomach ache and has lost his appetite which is major bad news. 
The new cells need lots of calories to convert to energy just to be able to function.

Tomorrow is another clinic day and we shall see what the great and mighty oracles say this time. Or Doctors as they prefer to be called.

But hopefully it will be along the lines of:
"Bone marrow test results are great and here's a magic pill to alleviate the GVHD"

Well you've got to be optimistic haven't you.



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