This is my lovely son.
The one who I've been talking about for the past 5 and 1/2 years whilst he so bravely battled Leukaemia.
Rest in Peace my angel but after what torture you went through down here make sure you party hard in heaven too.
Brett Woodier
The Real Superman
18th January 1995 - 30th December 2013
First, I am going to apologise to my followers.
I thought I had deactivated this blog but received an email via Amazon Kindle telling me I hadn't.
So please accept my apologises if you are a faithful subscriber who has sat patiently waiting for an update.
Allow me to update you all.
All had been very good after the top up cells in September, we were even allowed to go to the seaside for the day in October, a day now we are going to treasure forever.
At the end of October Brett's cells still weren't appearing and he had started sleeping all the time.
And I mean ALL THE TIME.
He was barely able to keep his eyes open and would just about manage to get up and get into the car for his twice weekly appointments at the hospital.
Obviously this started causing major concerns and many test were run.
In November 2013 Brett underwent a vile Liver biopsy which had to be performed in a very rare way due to his lack of cells.
Instead of the biopsy just being taken from his abdomen a surgeon took the biopsy by cutting into Brett's neck artery and feeding equipment through it right down to the Liver.
On the 23rd December we received the devastating news that Brett was in complete Liver failure and would need an urgent Liver Transplant or die.
Brett's Kidneys, lungs, heart and brain were also showing signs of intense damage.
The various and many consultants from the different departments converged around Brett's hospital bed and tried to find a way forward.
Could they perform a Liver transplant on a patient with no immune system? How quick could a liver be found? what about the kidneys, heart lungs etc.
The biggest question was that, as Brett was so toxic his body would not tolerate any painkillers unless.......he was placed on palliative care.
Brett took the incredibly brave decision to agree to no more treatment.
He had had enough and could not live in the immense pain no longer, he asked to be allowed to die.
All the consultants who had worked so closely with him - some for the 5 1/2 years - were devastated.
I could hear no more and went into the toilet in Brett's room, desperately trying to take in the fact that my child was about to die.
Two doctors followed me in and were talking -
'Does he have any chance?' I asked one of them
the consultant replied 'this is Brett, he has recovered from things as bad as this, that's why we call him superman'
another consultant put her hands on her hips and with her head down simply said 'I refuse to believe hes dying'
'is he dying?' I asked them both and they simply nodded.
No Liver could be found within the very quick timescale that he was deteriorating in and even if they could there would be ethical questions to ask about whether the operation should be allowed to go ahead -
He simply didn't have enough time left.
Brett came home on Christmas Eve to die and spent the time in his own bed in our living room until he finally passed on 30th December surrounded by the people he loved and who loved him so very very much.
