The two other teenagers that I was telling you about have come out of hospital ... And gone back in again.
So far, all 4 of the teenagers (Brett Included) have been in and out of hospital like boomerangs over the last few weeks.
Brett's had an Ecoli infection in his bladder and then was back in hospital again as it went to his kidneys too.
Then, as I was happily (begrudgingly) doing the ironing on a Wednesday night a few weeks ago, the phone rang and it was a hospital doctor telling us to get in to hospital immediately as Brett had a serious line infection.
'He can't have because he's too well'
How quick can you get here? Came the reply from the doc.
His central line is still in doubt as to whether it will stay or have to be replaced. The bug that was living in it, is notoriously hard to get rid of.
Brett had negotiated just having the line removed completely and switching to canulas when the need arose but that has been crushed now by our latest setback !
Brett's legs have stopped working over the last 5 weeks to the point where he collapses. After an urgent appointment and lots of tests with the Neurology consultants and it's been decided that Brett has a serious auto immune problem.
The donor cells that are happily in Brett's body are not recognising it as their new home. So the cells are attacking him as though he's a alien such as they would if they encountered an infection.
The cells have eaten his leg nerve endings and are now munching through lots of other things whilst at the same time, not allowing the bone marrow to grow, which could be why his blood counts are so low.
I write this today sitting in hospital waiting for Brett's blood transfusion to finish and his very IV high steroids to start. Hopefully the steroids will 'shock' the cells into stopping their attack.
